I would like to share the story of someone I have known for 10 years—a patient who was referred to me when her previous endocrinologist retired. Her story is even more special to me because she and I shared a childhood dream to spend time with elephants in the wild. Her dream came true—in a much more complicated way than mine will likely ever come to pass (or so I hope).
She was chronically ill from early childhood and had to spend much of her time at home. She read a book about elephants and was spellbound. She put the book in a suitcase and told everyone that one day she would go to South Africa and see these magnificent creatures. Because she was often on her own, away from school and isolated from her friends, she created an imaginary family around her to serve as her friends and provide her with comfort and support.
She was eventually diagnosed with cystic fibrosis at age 14. She was determined to beat the odds, survive, and become a teacher. At 21, when she had just completed her teaching practicum, she was diagnosed with diabetes. She took this in stride and continued on living her life to the fullest, until she became so ill that transplantation was the only option. She had a double lung transplant in 1999, at age 40. After the surgery she was able to breathe normally for the first time in a long time.
Since that time, she has spent her life as an ambassador for the transplant and cystic fibrosis community. She has kept a daily diary for over 16 years, chronicling her life and her gratitude for being alive.
She has done everything she can to keep her lungs in the best shape they can be. To that end, she has competed in five World Transplant Games and four Canadian Transplant Games. She usually competes in at least five events at each one: the 3 km, 1500 metre, 800 metre, and 200 metre runs, racewalking, and sometimes a relay! She has amassed an astounding number of medals—prior to this year she’d won six gold, five silver, and two bronze medals at the Worlds, and ten gold, eleven silver, and three bronze medals at the Canadian Games. She says her greatest athletic accomplishment was racewalking the Vancouver half marathon in Vancouver 2007 in 2:45:53. Over the years she has donated a number of her medals to comfort others with cystic fibrosis, those awaiting transplants, and donor families. She is one of longest-surviving double lung transplant recipients in Canada. Last year she received the Courage to Come Back Award in the medical category.
Earlier this year she learned that the World Transplant Games were in Durban, South Africa. She knew that whatever it took to get there, she would go. I urged her to read a book I knew she would love, The Elephant Whisperer, by Lawrence Anthony, a renowned conservationist. She did, and it spurred her on to realize her childhood dream. She spent time at Anthony’s game reserve, Thula Thula, in Zululand and visited many of the elephants and people she had read about in the book. The elephants were as much and more than she had ever expected.
At the games she won two gold medals and one bronze medal. Before leaving Africa, she spent another few days at Tau Game Lodge and saw an amazing variety of animals, including more of her beloved elephants. She was able to watch them up close at the local watering hole from her veranda. When she was leaving, the elephants congregated en masse outside the veranda, as if to say goodbye. The staff said that they knew a friend was leaving. I don’t doubt that this will be one of her most cherished and enduring memories.
In her life she has approached everything with a calm acceptance and grace, but with the ferocity of a lion. She has never lived it as if every day was her last, but rather as if it were her first. She is tireless in her efforts to encourage anyone she meets to follow their dreams and believe in themselves.
This tribute is to my friend, Margaret Benson. She has an indomitable spirit, and an incredible zest for life, and is truly an inspiration to me and to everyone who has had the good fortune to meet her.
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Halpern SD, Ubel PA, Caplan AL, Marion DW, Palmer AM, Schiding JK, et al. Solid-organ transplantation in HIV-infected patients. N Engl J Med. 2002;347:284-7.
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