Shape the future of epilepsy research
The Epilepsy Research Program of the Ontario Brain Institute has launched a national survey to identify and prioritize unanswered questions about epilepsy and seizures. They have teamed up with the Ontario Brain Institute and the James Lind Alliance to bring together patients, caregivers, and clinicians to agree on a top-10 list of research priorities for epilepsy.
About 300 000 Canadians are living with epilepsy. Depending on location and access to care, epilepsy patients in Canada may be treated by family doctors, pediatricians, internists, neurologists, or epileptologists. As clinicians on the front lines, your questions about the diagnosis, treatment, or management of epilepsy will help direct researchers toward finding solutions that better reflect your needs and will help you provide better care to your patients with epilepsy.
This is your chance to shape the epilepsy research agenda in Canada by helping researchers better understand the needs of people living with epilepsy and seizures. Researchers are interested in your perspective on the unanswered questions or treatment uncertainties that, if answered, will have the greatest impact on your patients and their quality of life.
You are eligible to complete the survey if you are:
- A health care provider working with people with epilepsy.
- A person with epilepsy or seizures.
- A caregiver, friend, or family member of someone with epilepsy or seizures.
- A Community Epilepsy Agency representative.
Share what matters to you by completing the short survey at braininstitute.ca/epilepsy-psp (survey is available in French and English).